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This is a memoir by French bestselling and award-winning author and musician Mathias Malzieu. It focuses on a single year in which he explores his close encounter with death. Insightful, tragic and even often very funny, it is a hugely inspirational read.
In November 2013 Malzieu is diagnosed with a rare and life-threatening blood disease: his bone marrow does not produce enough blood cells, and those that survive are being attacked by the body's natural antibodies as if they were viruses. Highly anaemic and at risk of a cardiac attack or fatal haemorrhaging, Malzieu is whisked into hospital, and spends months in a sterile isolation room. He is kept alive by blood transfusions, while waiting for a bone marrow transplant. When he has the energy for it, he writes in his diary and strums his ukelele.
To read this book is to be in awe of the triumph of the human spirit. As a reader you find yourself marvelling at how we find the mechanisms to cope with tragedy and uncertainty when faced with the reality that we may die. Malzieu's highly active imagination allows him to transcend the limits of his body and its increasing failures through fantasy and escapism. His wonderfully addictive childish wonder with a punk Gothic twist lifts the narrative from being a depressing account to a reading experience that is evocative, poetic and intensely moving.
Malzieu survived thanks to a revolutionary operation involving stem-cell treatment with the blood from an umbilical cord. As he leaves the hospital with not only a different blood group but also a different DNA, he describes himself as the oldest newborn in the world. As Malzieu says himself, 'To have had my life saved has been the most extraordinary adventure I have ever had.'